Curing NF

Displaying 1 – 12 of 21 Articles (1 of 2 Pages)

Q&A with Kalyan Vinnakota

This edition of Q&A features Kalyan Vinnakota, Senior Scientific Program Manager who is helping us accelerate a cure for neurofibromatosis (NF1). He leads the Vision Restoration Initiative, comprised of a “dream team” of basic science and clinical researchers focused on developing viable therapies for NF patients suffering from optic nerve […]
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Gilbert Family Foundation Releases 2022 Impact Report

For the first time, the Gilbert Family Foundation is excited to release our annual impact report. This 2022 report highlights the investments we've made and the programs we created in the past year, all of which support our mission to build opportunity and equity in Detroit and accelerate a cure […]
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Children’s Hospital of Philadelphia Receives $10 million Investment From The Gilbert Family Foundation to Accelerate Neurofibromatosis Research

In our efforts to accelerate a cure for neurofibromatosis, we are proud to announce a $10M investment funding neurofibromatosis research at the Children's Hospital of Philadelphia (CHOP), which will support critical medical research via CHOP's Neurofibromatosis Program.
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Gilbert Family Foundation Invests $23 Million Toward Curing Neurofibromatosis with Launch of New Brain Tumor Initiative and Expanded Support for Vision Restoration Initiative

The Gilbert Family Foundation today announced $23 million in grants to fund research projects as part of the organization’s Vision Restoration Initiative (VRI) and Brain Tumor Initiative (BTI).
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Exciting Updates to Gene Therapy Initiative Presented at Annual Meeting

Recently, we brought together nine research teams for our first-ever in-person Gene Therapy Initiative Annual Meeting.
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Watch: Vision Restoration Initiative Annual Meeting Brings “Dream Team” Together to Advance Therapeutic Research

Our Vision Restoration Initiative (VRI) awardees and their teams convened for our VRI Annual Meeting to discuss the results of their research projects focused on vision restoration therapies. Watch the video to learn more about the event and their findings.
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Leading NF and Vision Experts to Convene for Vision Restoration Initiative Annual Meeting

The Gilbert Family Foundation is excited to welcome 28 researchers to our 2022 Vision Restoration Initiative (VRI) annual meeting. We will be discussing the latest breakthroughs in neurofibromatosis type 1 (NF1) optic pathway glioma and vision restoration research.
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Gilbert Family Foundation Furthers Commitment to Curing Neurofibromatosis (NF), Invests Additional $18 Million Toward Gene Therapy Initiative

The Gilbert Family Foundation is excited to announce a new round of three-year grants in the Gene Therapy Initiative to support the development of curative therapies that address the underlying cause of NF1.
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Leveraging Preclinical Models to Develop Therapies for NF1

Preclinical models provide a key role in developing treatments for neurofibromatosis type 1. The Gilbert Family Foundation not only supports projects that utilize available preclinical models, but projects that aim to expand these resources.
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Gilbert Family Foundation Funds Clinical Study to Understand Vision Loss from NF1 Optic Pathway Glioma

The Gilbert Family Foundation today announced funding of a new $5.4 million clinical study which aims to understand the mechanisms of vision loss caused by NF1-associated optic pathway gliomas, or NF1-OPGs.
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Gilbert Family Foundation Collaborates with the Children’s Oncology Group and Children’s Hospital of Philadelphia to Validate a New Tool to Measure Progressive Vision Loss

The Gilbert Family Foundation today announced the launch of a clinical study that aims to validate optical coherence tomography (OCT) as a tool to objectively assess the visual system and its response to treatment in NF1 patients with optic pathway gliomas.
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GFF and Sage Bionetworks Collaborate on an NF1 Research Tools Database

The Gilbert Family Foundation (GFF) is excited to announce the development of a database for neurofibromatosis type 1 (NF1) research tools in collaboration with Sage Bionetworks. The database aims to support the development of a robust NF1 research toolkit while also lowering the barrier of entry to research for new-to-NF1 […]
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